Pardon the delay, I’m quite behind. Jordan turned 3 the beginning of March. It was a very significant day for me. A day we didn’t know if he would survive long enough to see. Right around 1 year old, when he was allergic to all food except sweet potato (and so bored with it after months of it breakfast, lunch, and dinner that he threw more of it at me than he ate) and my milk just wasn’t meeting all of his needs any more, we were told by the doctor and allergists, that they couldn’t do anything until he was three. My response, “THREE???? He can’t eat anything, he’s not going to live until three at this rate.” He had fallen from the 90th percentile on height to the 50th percentile, and his weight had fallen to the 5th percentile – not good, but not surprising.
Now two years later, not only did he turn 3, but having fought many a battle between then and now, he is thriving! It was a day of rejoicing and Jordan was excited, eagerly participating and knowing what was happening. It was incredible! Big brother even helped make his almond flour shortcake. Enjoy the snapshots of our miracle day, an incredible gift of God!
This slideshow requires JavaScript.
Hi. A friend of mine led me to your blog. I have 3 children with Fragile X syndrome. I enjoy reading other blogs and gleaning information. While many boys with fragile x are also diagnosed with autism, our oldest (6 years) was not. Through the fragile x, he displays a lot of the tendencies. He’s a very social (although lacking the proper skills) and keeps great eye contact. Our youngest just turned 3 and is not currently diagosed with autism. Our middle (4 years) is the lone princess. While she also has the fully mutated fragile x, you would never know it. She has very few ‘symptoms’, and even those may be ‘typical’. But with our case, we don’t actually know what ‘typical’ looks like.
Anyhoo, that’s just a snippet of us. It was great to read a few of your entries and I look forward to more. I’d love for you to visit mine as well. http://www.fragilemom@blogspot.com. Many blessings to you!
Just want to say what a great blog you got here!
I’ve been around for quite a lot of time, but finally decided to show my appreciation of your work!
Thumbs up, and keep it going!
Cheers
Christian, Satellite Direct Tv
Hi my name is ragni. I am so happy about your son. I have a three year old baby. And he is allergy to everyhing. Fron milk, beef, wheat, oak, egg white, egg york, any many more. My husband and I are very depress because he can’t eat anything. So please if you can help me I will be very happy. My cell is 646-775-5586. Thank you and god bless